Network Documents

The network annual report is an integral part of the Service Level Agreement between the National Services Division as the Commissioner of the network on behalf of the Scottish Government. It provides a summary of the year’s highlights and includes evidence of how the network has met its annual objectives.
The report describes how the network has delivered education events, involved stakeholders and developed new guidelines and patient information leaflets.

Annual Reports and Terms of Reference

2021 – 22 Annual Report

2020 – 21 Annual Report

2019 – 20 Annual Report

2018 -19 Annual Report

Archived Annual Reports

SPEG Terms of Reference

SPEG Quality Standards

The network has adopted the British Society of Paediatric Endocrinology and Diabetes (BSPED) standards of care. These standards were the basis for the development of SPEG Quality Standards and Quality Indicators (QI’s) which were developed by the QI sub-group. These quality measures have been agreed by the steering group. Further work needs to be done on measurement of these indicators. It is hoped that CAS can be used to measure these indicators in the coming year.

These standards are currently under review. The current chair of the group is Dr Kathryn Cox.

SPEG Quality Standards

Information Governance Standards

Information Governance covers all types of information, providing a framework for handling information in a confidential and secure manner to appropriate ethical and quality standards. It ensures that information is; held securely and confidentially; obtained fairly and lawfully; recorded accurately and reliably; used effectively and ethically; shared appropriately and legally. The NMCN must comply with guidance and legislation from a number of sources and make sure that all employees know their responsibilities in respect of legislation i.e.

  • The Data Protection Act 1998
  • The Freedom of Information (Scotland) Act 2002
  • Confidentiality: NHS Scotland Code of Practice on Protecting Patient Confidentiality
  • Caldicott Guardians
  • Professional Guidance, for example from the General Medical Council or the Nursing and Midwifery Council

NSD does not require returns to include patient-identifiable information; information on clinical activity required by NSD must be submitted in anonymised format.

All NHS Staff are accountable to their employing NHS Board.

The process of consenting patients for CAS has changed in line with new General Data Protection Regulation.  Explicit “opt in” consent for all patients recorded on CAS, both existing and new patients, must be obtained and documented. Each existing patient will be sent a new form for completion, with patients also being targeted at clinics to encourage completion of the consent form with the aim to of yielding a higher return rate.  This new legislation means that by May 2019, all new patients registered on CAS must have actively consented to their information being held on this system.